THE HEREDITARY NEPHRITIS FOUNDATION (HNF) HOME PAGE

INTRODUCTION: The HNF supports education and research on Alport syndrome, and offers the irregular periodical HNF Newsletter. While a small organization, the HNF has since 1978 provided essential seed money for laboratory and clinical research projects at University of Utah and other institutions.
Note:  This site was initiated and maintained by Dr. Curtis L. Atkin who passed away on January 23, 2000.  It was most recently amended by David Barker on May 29, 2000.

• A simple discussion of Hereditary Nephritis (HN)
• Digest of the major reviews Alport Syndrome..., chapters in editions 4-6 of Schrier's & Gottschalk's multi-volume "Diseases of the Kidney"
• What's in a name? Alport's versus Alport, a tongue-in-cheek half-essay not to be taken too seriously

The Alport Syndrome Home Page focuses on medical and genetics resources at the University of Utah and elsewhere.

Coordinator of the HNF:
Mr Kay R. Johnson
1390 West 6690 South, #202H
Murray, UT 84123-6914
Voice and fax 801-262-5901
e-mail: KayRJohnson@MSN.com

Coordinator of the HNF - North Carolina Branch:
Mrs Dana Richman

Gene Testing & Reproductive Choices

Index to HNF NEWSLETTER Articles on the Web

Organ Donation: Information and Cards

Personal Stories of Alport Syndrome. Sunny Brooke can be contacted through the Alport Delphi site where she is known as Becca6, Dr. Atkin and Cousin F are deceased. Dr Faber's, Mr Ogonowski's, and Mr Blackton's stories include addresses.

• Ailing Realtor leans heavily on daughters, Internet version of 3/29/98 newspaper article in the "Las Vegas Review-Journal and Las Vegas SUN"
• Cousin F's Letter Incited the "Utah" Alport Study
• Curtis L. Atkin: Why I am Interested in Kidney Disease
• Dialysis-on-the-Road, long-term home hemodialysis patient George Harper and his wife travel independently in a motor home
• Dr G's Letter Regarding his Mother
• Dr Richard Faber's 28 Years on Dialysis
• Dr X: My Case History of Alport Syndrome
• Emre Urgenc, a remarkably cosmopolitan young man, living in Turkey, recently received a kidney transplant
• Joe Ogonowski: Keeping Fit on Dialysis
• Sunny Brooke: My Search for the Genealogy of Alport Syndrome
• William Blackton: Dialysis Saved my Life
• John F. Martin: An Alport patient's photodocumentary of his transplant experience.
• The Tissot family: A story of kidney donation in an Alport affected family

Resources Regarding Hearing Loss