THE HEREDITARY NEPHRITIS FOUNDATION (HNF) HOME PAGE


Alport Forum chat & message boards
Hereditary Nephritis Foundation NC Message Board



INTRODUCTION: The HNF supports education and research on Alport syndrome, and offers the irregular periodical HNF Newsletter. While a small organization, the HNF has since 1978 provided essential seed money for laboratory and clinical research projects at University of Utah and other institutions.
Note:  This site was initiated and maintained by Dr. Curtis L. Atkin who passed away on January 23, 2000.  It was most recently amended by David Barker on May 29, 2000.


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About Alport Syndrome:

The Alport Syndrome Home Page focuses on medical and genetics resources at the University of Utah and elsewhere.

Coordinator of the HNF:
Mr Kay R. Johnson
1390 West 6690 South, #202H
Murray, UT 84123-6914
Voice and fax 801-262-5901
e-mail: KayRJohnson@MSN.com

Coordinator of the HNF - North Carolina Branch:
Mrs Dana Richman

Gene Testing & Reproductive Choices

Index to HNF NEWSLETTER Articles on the Web

Organ Donation: Information and Cards

Personal Stories of Alport Syndrome. Sunny Brooke can be contacted through the Alport Delphi site where she is known as Becca6, Dr. Atkin and Cousin F are deceased. Dr Faber's, Mr Ogonowski's, and Mr Blackton's stories include addresses.

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Resources Regarding Hearing Loss


Webmaster's Comments: Version of May 29,2000. Please send Alport materials and comments to David Barker. I cannot respond regarding your personal health: see your nephrologist!